American Academy for Cerebral Palsy and Developmental Medicine
Cerebral palsy is not a curable disease and therefore people are more inclined to contribute to cures. They must not forget that cerebral palsy is life-long and that with proper care, therapy, and family support, children with cerebral palsy can live happy productive lives. That is why continued research is essential to improve lives. Research has come a long way to give hope to families and these children. Many children would have been put in homes without the research that allows families to keep them at home. Children who would have died at a young age are living into productive adulthood.
Because cerebral palsy is a complicated and multi-symptom disability, it takes a team of medical professionals to provide the quality of care needed to assure optimal results. The AACPDM is a unique organization in that it is truly multi-disciplinary; orthopedic surgeons, physical and occupational therapists, physiatrists, speech language-hearing therapists, developmental pediatricians, psychologists, educators all take part in the interchange of information, develop multi-center research projects, and offer comprehensive and caring treatment.
- Family Centered
The AACPDM has brought about a change in the way families and children with disabilities are treated. Instead of going from one professional to another, teams of medical professionals now offer comprehensive diagnosis and treatment. By working together, members of the AACPDM have advanced research and improved care. Members have helped bring issues to the attention of the public and have advocated for their patients.
The money contributed is looked after by a professional staff and a Board of Directors made up of dedicated professionals. The separation of duties assures many eyes watch over expenditures. Contributed monies are put in a restricted fund and used only for research projects reviewed by the Research Committee. These research projects must meet very strict criteria. One of the on-going projects is a series of evidence-based papers that can be accessed on our website; www.aacpdm.org